Press release

T1D Exchange Launches Online Registry to Drive Type 1 Diabetes Research

Sponsored by Businesswire

today announced the official launch of the T1D Exchange
Registry, an online longitudinal database of people living with type 1
diabetes (T1D). This pioneering effort provides a mobile-friendly
platform for people throughout the U.S. to participate online and share
information about their T1D in order to help researchers develop more
targeted and effective approaches to treating and living with the
disease. The effort may also help inform reimbursement and policy

T1D is an autoimmune condition in which an individual’s body is unable
to produce insulin. The disease affects approximately 1.25 million
people in the U.S., with an estimated 40,000 new people diagnosed each
year. Neither preventable nor curable, living with T1D requires constant
monitoring of blood sugar levels and unparalleled attention to care in
order to avoid the acute dangers caused by hypoglycemia, in which blood
sugar drops too low, or the long term implications of hyperglycemia, in
which blood sugar rises too high.

Supported by The Leona M. and Harry B. Helmsely Charitable Trust, the
T1D Exchange Registry aims to create the largest online cohort of
individuals living with T1D in the U.S. Participants take part in a
brief, once a year survey, enabling researchers to learn more about
disease management and progression, acute complications, glycemic
control and utilization of health services. The registry is completely
online, enabling individuals living throughout the U.S., including
underrepresented populations, to share their personal experiences and
data. In the future, registry participants will also have the option to
take part in additional research opportunities such as surveys or
uploading health device data.

“Longitudinal analysis is critical to drive meaningful diabetes research
and innovation, and this project will provide a significant, publicly
accessible way to study longer term issues, such as the effects of aging
and the progression of the disease,” said Wendy Wolf, PhD, director of
the T1D Exchange Registry. “T1D Exchange believes in giving everyone
with type 1 diabetes a voice and the registry enables everyone,
regardless of where they live, with the opportunity to drive research
and improve outcomes and quality of life.”

For more information about the T1D Exchange Registry please visit:

About T1D Exchange
T1D Exchange is a nonprofit, research
organization dedicated to accelerating therapies and improving care for
people affected by type 1 diabetes. T1D Exchange actively supports
discovery and innovation through its biobank, patient data and biennial
Diabetes Innovation Challenge. At the same time, the organization
understands that evidence gathered in the “real world” can help bridge
the gap between discovery in research settings and impact in people’s

T1D Exchange model uses cutting-edge tools, research methods, and a
robust IT platform to gather evidence from the real-world and clinical
experiences of people living with type 1 diabetes. The goal is to
connect biological samples, medical data, and patient insights to all
stages of research and development, expediting the development of
therapies and better care for everyone affected.